So it’s confirmed (pretty much)…I have Lyme. Holy !@#$%&*
I say “pretty much” because I still need to talk to my new doctor, Dr. Steven Meed, about my results. They’re from IGeneX and, as I mentioned previously, he’s running another test via Stony Brook because he’s not a fan of IGeneX. I’d like to get his perspective, but for all intents and purposes I’m considering myself a Lymie.
According to IGeneX’s analysis, I tested fairly positive for Borreliosis. However, I do not meet the positive criteria for the CDC or New York State. Fortunately that doesn’t matter much anyway since most doctors who treat Lyme don’t look to the CDC’s criteria and New York has the most stringent criteria in the country. See the bottom of this post for the exact IGeneX results.
I’m into my second week of Doxycycline and still feeling worse than when I started, but I’m feeling less of a spike in symptoms (herx) after dosing in the evening (200mg). It feels a little more even with just some minor peaks and valleys. I read somewhere that the bugs are only (or mostly) killed off when they migrate or multiply or whatever it is that they do to move around and grow. This only happens once every few weeks and people have reported having cyclical herxing every 4 weeks or so. I’ll be on the look out for that.
I’m still concerned about my viruses. My HHV-6, EBV and Pp titers were pretty high. Dr. Meed said that this is because of the Lyme. It’s beating up my immune system so the viral levels come up. His thinking is that if I treat the Lyme and get my immune system back on track it will take care of the viruses the way it’s supposed to. I hope this is true.
So… what a whammy, right? For the last 6 months… well, 4 months really, I’ve been living, eating, breathing Chronic Fatigue Syndrome. I was ready to turn life on it’s ear and enter the dark and mysterious world of the Marshall Protocol. Now here I am with a real name to my condition and a somewhat more practical approach to treatment. Of course I’m fully aware of the fact that it’s highly unlikely that this is going to go away in the next few weeks. I expect a time line of many months followed by a lifetime of continued vigilance against relapses, but at least there’s an event horizon for getting my life back.
As promised above, for those of your reading and researching, here’s exactly what my IGeneX results say. I was also tested for Erlichiosis, Bartonella, Babesiosis, but the titers were in the :20 and :40 range and clearly negative.
IGENEX IGG RESULTS = Positive
CDC/NYS – RESULTS = Negative
IGG:
18 kDa. -
22 kDa. -
**23-25 kDa. ++
28 kDa. -
30 kDa. -
**31 kDa. IND
**34 kDa. -
**39 kDa. IND
**41 kDa. ++
45 kDa. -
58 kDa. ++
66 kDa. -
73 kDa. -
**83-93 kDa. +
IGM:
18 kDa. -
22 kDa. -
**23-25 kDa. IND
28 kDa. -
30 kDa. -
**31 kDa. ++
**34 kDa. -
**39 kDa. -
**41 kDa. +
45 kDa. -
58 kDa. -
66 kDa. +
73 kDa. -
**83-93 kDa. IND
