Brain scans detect fibromyalgia – http://t.co/eejaOvi4 #lyme #lymedisease #fibromyalgia
Would love to know if you have gotten better/worse/same since going off of abx. I am 15 months into treatment w/no improvement. Both of my kids have this and it is killing them psychologically/physically. Really feel like pumping all of us with abx can’t be the answer. Did you ever do LDN?
No better, no worse. Well… perhaps I’m “better” in the fact that I don’t obsess over Lyme anymore. I still have wicked brain fog and some neuro issues, but I run — a lot — and do just about everything else I want.
Very sorry to hear that you and especially your kids are not seeing any improvements. I finally just gave up on ABX after about 15 months and focused on diet and being healthy. I found that the small changes I made (gluten-free, low carbs, exercise) made more of a difference than the drugs/herbs were (after I recovered from the acute symptoms). LLMD currently thinks it’s something else, but has no idea what. He says it very unusual for someone to stay at the same symptom plateau for over 3 years (wow!) without regressing… especially someone who challenges his body with exercise the way I do.
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